CEDRICT: Patient Education Components


Exploring ways to provide ongoing "continuing health education", the pilot CEDRICT 2009 field research audience responded overwhelmingly to a new health communications tool called "African American Health Matters" a mobile health text message and multimedia patient education outreach that focuses upon over a dozen categories of health and chronic disease topics that critically affect African Americans; offering positive lifestyle tips and resources. The fact that 91% of Americans use cell phones9 shows that this could be a viable avenue to communicate health matters.

African American Health Matters kicked off September 19, 2009 and grew to over 25,000 subscribers. The companion starter web site, launched with a donation from YUM, allows the health text message service to expand into social networks and popular African American news and professional web sites for subscribers. Working face-to-face at events, C.E.D.R.I.C.T. reaches a wide variety of age and socio-economic levels within the culture. The mobile text service is free to anyone who signs up. African American Health Matters expects to soar to over 250,000 subscribers by 2012.

African American Health Matters Multi-Media Patient Education Outreach: Grass-roots
(How each works, methodology, metrics for success, how outcome is measured. evaluated)
Description, Methodology, Outcomes, Evaluation

The multi-media outreach of African American Health Matters includes:

  1. Mobile Health Text Messaging
  2. Internet presence and Social Networking
  3. African American Conventions, Expos, National Health Fairs Outreach
  4. Commercial Media Outreach
  5. International Media Outreach

Mobile Health Text Messaging
African American Health Matters Mobile Health Text Messaging is the core of the health, and disease education outreach. The health text messaging service is free to subscribers and designed to outreach to participants through their cell phones
Messages are sent monthly, bi-monthly or weekly to between 25,000 - 40,000 subscribers who have specifically requested information about disease resources, health tips and information about local and national clinical trials resources. Nearly 58% of CEDRICT audiences surveyed and who are without Internet access will receive this information ONLY through their cell phones.
The Health text messages focus upon chronic diseases critical to African Americans such as cardiovascular, diabetes, acid reflux, cholesterol, hypertension, smoking and cancer. The web site promotes social networking. Partnered Disease organizations include, Arthritis Foundation, Patient Advocate Foundation, Us TOO (prostate cancer organization), Colon Cancer Alliance, American Lung Association, American Diabetes Association and other organizations related to hypertension, acid reflux, obesity, breast cancer, atrial fibrillation, HIV-AIDS, adult immunization and other chronic diseases.
African American Health Matters' Mobile Health Text Message Service acts as a patient educational tool for the potentially hundreds of thousands of minorities who frequently communicate through text messaging. The 2009 field research showed that African Americans of all ages and socio-economic backgrounds communicated frequently via cell phones. " For low income people, cell phones are an indispensable way of reaching them and engaging them about their health."

Web Presence
Companion Internet Web Site and Social Networking The new companion Web site, http://www.africanamericanhealthmatters.com allows online visitors to register for the text service. The Web site also offers, disease and health organization links. By fall, 2010, supported by media outreach, African American Health Matters will create links for health articles by guest physicians, a field research, Sponsorships and a link for upcoming (BICT) "Blacks in Clinical Trials" web site that will provide more direct and in-depth registration into clinical trials specifically for African Americans.

Methodology:
Currently, participants are signed up as part of the CEDRICT field research, through partnered African American conferences, health fairs, partners' database membership calling, and through the web site. Our statistics confirmed, "mobile phone is transforming how health services are delivered."13, African American Health Matters' quick expansion to more than 20 states and 30 cities nation-wide with minimal start-up funding is proof that the concept can expand significantly with adequate funding.
By Fall 2010, the service will move into short code subscription service, allowing for wider media outreach on commercial radio, television and through faith-based and community service announcements. This will significantly help drive a broader audience of participants to the web site or to call the 800# for more information.

In addition, the site's Internet social networking will develop to include outreach not only through the traditional social networks (i.e. Face Book, Twitter, My Space, Linked In, etc.), but also outreach to African American Greek, professional and health sites with articles abut the web site placed on other Black web sites.

A high priority will be on developing an online segment for guest physicians to write articles and provide resources on http://www.africanamericanhealthmatters.com that will be promoted on health and social networks.

Outcomes, Evaluation
The opportunity to move into "short codes" for mobile subscribers will expand the outreach to the general public and can be measured by the number of added subscribers to the database. We will also conduct Mobile Subscriber Surveys.

Our subscribers are more likely to answer a quick survey via text message than complete a lengthy time-consuming form elsewhere, making the mobile channel among the very best means of gathering data. With our mobile subscribers being the best source of insight into product and service development, we will partner with a mobile industry leader in this field. Services such as In Touch Survey Systems, and Zoomerang are services that have been researched for use by end of 2010, and who offer versatility for responses for both mobile and internet surveying.

Key Outcomes of Mobile Surveys

  • Immediate engagement: subscribers can opt into a survey in an instant
    without looking for a pen to fill out a form on site
  • Versatile (service) engine allows single or multiple question surveys
  • Surveys will offer a means to encourage users to opt-in to our Subscription List
  • We partner to offer free educational literature for subscriber participation
  • Gather response data for analysis & future planning sessions

Key Outcomes of Online Surveys
These surveys will be evaluated based upon both number of responses, and updated needs as determined by answers. By January 2011, we will have an updated field research specifically geared to mobile health text subscribers and online participants that can be charted and compared with current disease education priorities.

Throughout the year, "African American Health Matters" will add new disease education, topics based upon subscriber requests. We will survey frequently for subscribers in other chronic disease categories such as HIV-AIDS, adult immunization, treatment updates, Multiple Myeloma (a growing disease among African Americans), and others.

Evaluation Criteria:
Mobile and Internet surveys will compare audience chronic disease priorities, effectiveness of text messages, and positive impact

SAMPLE QUESTIONS may include: Have areas of health awareness, chronic diseases and clinical trials education improved over the past 12-18 months because of "African American Health Matters?" If so would you recommend to friends and family? Would you be likely to participate in a clinical trial locally if offered in their disease area? If yes, please complete field research: We will develop mobile surveying to include key field research questions.

African American Conventions, Expos, and National Health Fairs Outreach
African American Conventions, Expos, Health Fairs Outreach allows for on-site surveys and registration of participants at large minority health fairs, expos, ethnic festivals, and conventions.15 They offer unprecedented opportunities to conduct field research related to personal health education needs and resources available to participants, and gather ideas related to ways to disseminate health information compatible to this audience.

The NATIONAL MINORITY HEALTH FAIRS project reaches hundreds of thousands face-toface to conduct field research survey, focus groups and to register subscribers for the Mobile Health Text Messaging Service. These events, with our national partnerships, foster increased understanding of chronic diseases that affect African Americans.

The conventions, conferences and health fairs are traditionally a part of annual professional, Greek, business, faith-based and social gathering of members and many focus upon health issues that focus on disparities in health care. CEDRICT addresses health disparities from the ground up and through disease education. With over 103 African American organizations in our network, and partnership with media that reaches over 10 million African Americans per day, 50 Hoops/NPFR, annually partners with dozens of a wide range of African American conventions, conferences, expos and festivals. Through this face-to-face interchange we conduct important surveys that tell us more about our audiences, which helps us gather important national data for C.E.D.R.I.C.T'S field research, as well as offer on-site education and information from our sponsors.

January - June Annually
National African American Conventions & Expos (Av. 150,000 Reached on-site)
June - December Annually
Local and National African American Expos and Health Fairs 2010 Partnerships (over 350,000 Reached on - site)
(Over 3 Million African Americans attend annual events)

Health Events, Black EXPOS and Partnerships...


Conventions, Expos and events annually reach hundreds of thousands of African Americans face-to-face

Methodology:
CEDRICT utilizes dozens of on-site labor to administer field research in the huge crowds at Conventions and Expos. Health Fair partners within these venues work to help facilitate focus groups and encourage participants to give their opinions about health and clinical trials. On site participant response comparisons by Year and by Organization is attached.16 Our methodology is to:

  • Participate in ethnic outreach events to exhibit, conduct "African American Health Matters" surveys and clinical trials recruitment education
  • Participate in disease-related health initiatives with surveys clinical trials educational information.
  • Partner with faith-based health initiatives to canvass interest in clinical trials
  • Create MINI focus groups within the setting of large events to survey participants and register them to receive more health and clinical trials information.
  • Develop dialogue with community partners at events to provide clinical trials educational information about diseases that impact their communities.

Outcomes, Evaluation
Each year the Summary of all events are tallied17 to tell us any in attitudes about health and clinical trials information, access, disease priorities and education.
Results are tallied, analyzed and charted and combined to provide an annual summary and overview.
Commercial Radio Outreach

In 2004 NPFR PROJECT entered into partnership with Radio-One, the largest African American Radio station in the United States to recommend health interviews and provide physicians for radio-call-ins and features on health. Such popular shows as "the Tom Joyner Show," "Michael Baisden show", are among those NPFR has worked with in the past and who offer informational and controversial health topics, once we are ready to promote to general public. Our vast database of African American physicians and health professionals offer many opportunities for media and community outreach.
We will also utilize public service radio (i.e. Tavis Smiley Show) to promote the mobile text service. Other commercial radio (i.e. tie in to local Gospel stations) will also be used as partners for NPFR Project initiated events such as described in the Lecture Series section.

Methodology:
Methodology includes exploring opportunities to:

  • Develop Radio public service features on ways to keep up with health matters and new drug developments through signing up for African American Health Matters.
  • Develop community and media outreach opportunities for providing educational information on disease and clinical trials.
  • Continue to develop partnered Radio public service features on health matters with popular Black DJ's and Talk Show Hosts, such as Steve Harvey, Michael Baisden, and Dr. Ian Smith.
  • Participate in disease-related health initiatives' events and community-based advertising (i.e. church, community and membership newsletters) with surveys, disease information updates.
  • Promote web site Physician articles, focusing upon various diseases that critically affect African Americans.
  • Partner with community and faith-based health initiatives to explore media outreach opportunities to tie into their programs and parallel "African American Health Matters" disease outreach.

Methodology:
CEDRICT utilizes dozens of on-site labor to administer field research in the huge crowds at Conventions and Expos. Health Fair partners within these venues work to help facilitate focus groups and encourage participants to give their opinions about health and clinical trials. On site participant response comparisons by Year and by Organization is attached.16 Our methodology is to:

  • Participate in ethnic outreach events to exhibit, conduct "African American Health Matters" surveys and clinical trials recruitment education
  • Participate in disease-related health initiatives with surveys clinical trials educational information.
  • Partner with faith-based health initiatives to canvass interest in clinical trials
  • Create MINI focus groups within the setting of large events to survey participants and register them to receive more health and clinical trials information.
  • Develop dialogue with community partners at events to provide clinical trials educational information about diseases that impact their communities.


Cyberstation Radio: African American Health Matters Talk Show

CEDRICT will host a NEW Internet Radio Talk Show, "African American Health Matters starting late Fall 2010. The broadcast will air on Cameo Entertainment Cyberstation USA. The Cyberstation USA can be accessed via mobile phones, which offers expanded opportunities for patient education.

Cameo entertainment Group Cyber Station USA.Com is the world's largest online radio station , with millions of listeners , and home to many of the most well known broadcasters .Cameo Entertainment Group owns operates Cyber StationUSA .Com ,the world's largest ,privately held exclusive online radio station with millions of listeners worldwide CyberStation USA.Com is home to some of the most known vroadxasters and shows on the radio industry ,including : Mike Siegel ;Don Steele;Don Ecklers and Dark Matters Radio; ;peter Anthony Holder and The Stuph File Programs ; Brother Don Steel and The Sunday Services ; On The Street with Wayne Metramo,and mant ,many more CyberStation USA represents a completely integrated, one-stop-shop for advertisers seeking a highly engaging platform that reaches their targeted consumers And provide exceptionally high ROI

Methodology:

The radio show will feature interviews with guest physicians and organizations that provide health or disease resources, health tips, disease information, (similar to those on the mobile health text messages), updates on new outreach such as HIV-AIDS (facts and myths) and adult immunizations news updates (where, when applicable). There will also be opportunities for announcements about clinical trials20 resources and audios from Lecture Series.

The radio broadcast will also offer Information on health and disease resources (800 numbers and web sites), toll free number to call to complete field research and receive educational materials on clinical trials (offered through us by our partners).

The "African American Health Matters" cyber radio broadcast will pilot in 2010 with 1/2 hour show; moving to one-hour segment in 2011 based upon audience response.

a. We will drive traffic to the broadcast:

  • Through link on the "African American Health Matters" web site home page
  • Through online African American health and social networking sites online
  • At partnered African American Conferences, Expos, festivals (via flyers, post cards or business cards)
  • We will create opportunities for Television talk shows to discuss "African American Health Matters"
  • Announce "African American Health Matters" " and radio broadcast through our national AA database of Black churches
  • In Black church (Sunday) bulletins, pulpit announcements
  • Partner organizations' community newsletters, bulletin boards etc.
  • On commercial radio, let audience know they can listen to broadcast over their cell phones.

b. Tentative Format for "African American Health Matters" Cyber Radio Broadcast:

  • 9 1/2 minutes: Introduction: Disease information, new resources,
    focuses on FEATURE disease topics for the week.
  • 30-sec Sponsor BTYB announcement, Sponsor advertiser
  • 10 minutes: Interview with guest physician on FEATURE disease topic of the week
  • 30-sec Sponsor BTYB announcement, Sponsor advertiser
  • 4 minutes: interview with disease/health organization about disease facts and access to resources on topic.
  • 6 minutes: wrap up: announcement about next show, web site, 800 to join mobile text, "African American Health Matters", health events upcoming in key cities, how to complete field research, how to receive our clinical trial education brochures and DVD's, and sample of mobile health trips.

NOTE: African American Health Matters on CyberstationUSA can be reported in newspapers, radio, at sporting events and promoted as part of public service television appearances. This allows for BTYB (brought to you by) credits for funding organizations.

We will be working toward a crossover promotion between our Commercial and Cyber Radio partners, with targeted disease partnerships for 2011

Outcomes, Evaluation
CyberstationUSA has it's own methodology to gather statistics and demographics as part of their online research.). In addition, there will be opportunities for "African American Health Matters" cyber radio talk show to administer quarterly listener surveys to gauge:

  1. Validity of topics discussed
  2. Suggestions for other disease and health topics
  3. Recommendations from audience on content
  4. Effectiveness of show's overall approach to health matters
  5. Effectiveness of educational literature or DVD related to participating in clinical trials.
AAHM will conduct bi-annual and annual summary reports of surveys taken of the "African American Health Matters" cyber radio talk show audiences, and other listener opinion polls taken by CyberstationUSA.com or other sources.



Contact Us

National Physician and Family Referral (NPFR) Project
14902 Preston Road, #404-744, Dallas, TX 75254
1-800-677-8441
See also: http://www.africanamericanhealthmatters.com

STAY HEALTHY where it matters
Register to participate to get mobile health tips of your choice on your cell phone

Educational Outreach Components

The CEDRICT project has developed a patient and community health education project entitled: "African American Health Matters", a mobile text message service that reminds subscribing African Americans of all ages about health matters critical to their daily lives. The Mobile Health Text Message Service kicked off September 19, 2009 with nearly 5,000 ground-zero subscribers. In less than a year over 50,000 subscribers receive monthly and bi-monthly health tips messages. The companion web site, http://www.africanamericanhealthmatters.com, allows the health text message service to tap into a younger group of African Americans, and the professionals, educators and black entrepreneurs.




AACT I Lecture Series 2012